Being, Belonging, Becoming: growing a positive Autistic identity

By David Gray-Hammond and Helen Edgar, NeuroHub ConnectUpdated 7 October 20264 min read
The short answer

A positive Autistic identity means understanding autism as a different way of being, not a deficiency. It grows through understanding how your mind and body work, finding words that fit you, easing shame, finding community and lowering the mask when it is safe. Research links a positive Autistic identity and community connection with better mental health (Botha & Frost, 2020; Cooper et al., 2017).

What a positive Autistic identity is (and isn't)

A positive Autistic identity is one that understands autism as a different way of being in the world, with its own logic, strengths and needs, rather than as a deficiency. It isn't pretending everything is easy, and it doesn't claim autism causes no difficulty. The neurodiversity paradigm (Walker, 2021) understands neurological variation as a natural part of human diversity, that the meaning attached to it is socially produced, and that Autistic people are entitled to exist as they are, not to approximate a norm.

A positive identity doesn't mean feeling positive all the time. Some days may hold pride, others grief, exhaustion or anger at how you've been treated. All of that belongs. Positive identity is about how you understand yourself, not how you feel today.

It's also protective. Research on minority stress suggests that much of the harm linked to a stigmatised identity comes through internalised stigma, and that community connection and positive identity help buffer it (Botha & Frost, 2020). It even helps in recovery from burnout, because it lets you lower the mask without feeling you've given up.

Your Autistic identity sits alongside all your other identities, including gender, sexuality, race, culture, faith, class and other disabilities. For many people these weave together rather than sit side by side, and neuroqueer thinking explores that weaving (Walker, 2021). For multiply marginalised Autistic people, finding affirming spaces can be harder, and that's a failure of the spaces, not of you (Botha & Gillespie-Lynch, 2022). See Autistic Realms' Neuroqueer Learning Spaces and More Realms.

Seven things that may help

There's no order you have to follow, and none of these are tests. We've grouped them as Being, Belonging and Becoming.

Being

1. Understand how your mind and body actually work

Ideas like monotropism, the double empathy problem, sensory differences and interoception turn “what is wrong with me?” into “I know what this is”. A name converts an inexplicable personal failure into a recognised phenomenon with known causes and responses, and that conversion is itself therapeutic.

If you're AuDHD, your identity may hold both Autistic and ADHD experience, sometimes pulling in different directions. Both are part of you.

2. See masking for what it is

Masking was a rational response to a real threat. It's not something to be ashamed of. You can set it down at your own pace, in places that feel safe enough.

3. Get the safety and support you need

Identity work is hard thinking and feeling. If you're depleted, recovery comes first. Building genuine safety is part of it.

Belonging

4. Find your people

The shared experience of Autistic community replaces a private sense of personal defect with a shared account of a structural situation, and that has real, measurable effects on mental health (Crompton et al., 2020). Online, text-based and interest-based spaces all count. Finding Autistic community.

5. Find words that fit you

Language carries decisions about where problems are located and who has to change. Many Autistic people prefer identity-first language, but the choice is yours. You might swap labels like “high-functioning” for specific descriptions of what you need. More on language.

Becoming

6. Reinterpret the past with kindness

Much of the shame Autistic people carry was learned, not earned. Try rewriting old stories as nervous-system events and unmet needs. “I'm lazy” often becomes “I was in burnout and nobody knew”.

7. Trust your own account

You are the primary expert on your own experience. Where a book, a professional or a framework disagrees with your lived experience, treat it as a hypothesis to test, not a verdict. You don't need a diagnostic letter for your identity to be valid: self-identification is legitimate.

Small things you might try, when you're ready

There's no rush, and none of these are homework:

  • Write one sentence that describes how your mind works, in your own words.
  • Replace one negative label you use for yourself with a specific description of a need.
  • Read a page by an Autistic author.
  • If it feels possible, ask someone you trust for one small thing that would help, such as a warning before a change.
  • Notice something you love about how your mind works.
  • Stim, openly, somewhere safe.

For young people

For Autistic children and young people, a positive identity grows through accepting adults and environments, not through being taught to like themselves. See Autistic Realms' family resources and Re-Storying Autism (which includes a section for young people aged 8+).

Common questions

Is “Autistic pride” only for people who find autism easy?

No. Pride in being Autistic doesn't deny difficulty or the need for support. It is the refusal to treat your neurology as a defect, and to be obliged to imitate a norm. Autistic Pride Day is 18 June. See Autistic Realms' Weird Pride project, and Morven's First Autistic Pride for younger readers.

What if I feel ashamed of being Autistic?

That's very common, and much of the shame was learned from environments that punished difference. Understanding your mind, finding community and reframing your history with kindness can loosen it. Take it at your own pace.

Do I need a diagnosis to have an Autistic identity?

No. You can know you are Autistic before diagnosis, without one, or with no prospect of one. Formal diagnosis is important for some support, but it isn't the gateway to identity.

How does a positive identity help mental health?

Research on minority stress suggests the harm from a stigmatised identity is mediated by internalised stigma, and buffered by community connection and positive identity. It also lets you reduce masking without feeling you have failed.

References

  • Botha, M., & Frost, D. M. (2020). Extending the minority stress model to understand mental health problems experienced by the autistic population. Society and Mental Health, 10(1), 20–34.
  • Botha, M., & Gillespie-Lynch, K. (2022). Come as you are: Examining autistic identity development and the neurodiversity movement through an intersectional lens. Human Development, 66(2), 93–112.
  • Cooper, K., Smith, L. G. E., & Russell, A. (2017). Social identity, self-esteem, and mental health in autism. European Journal of Social Psychology, 47(7), 844–854.
  • Crompton, C. J., Hallett, S., Ropar, D., Flynn, E., & Fletcher-Watson, S. (2020). "I never realised everybody felt as happy as I do when I am around autistic people": A thematic analysis of autistic adults' relationships with autistic and neurotypical friends and family. Autism, 24(6), 1438–1448.
  • Walker, N. (2021). Neuroqueer heresies: Notes on the neurodiversity paradigm, autistic empowerment, and postnormal possibilities. Autonomous Press.

Keep reading

Please note. This guide is general education based on Autistic-led research and the book Supporting Autistic People. It is not medical advice or therapy. If you are struggling, speak to someone you trust or a health professional, and see findahelpline.com for helplines in your country. If you are in immediate danger, call your local emergency number.